Will Whole Genome Research Result In Genetic Profiling?
The consensus statement, a product of a workshop involving an interdisciplinary panel of eminent bioethicists, lawyers, and researchers, tackles the central issues facing whole-genome research: informed consent, the right to withdraw from research, the return of results, and the public release of data. In each case, the authors argue, the public dissemination of collected data presents challenges to the standard methods researchers use to protect participants’ privacy and autonomy.
I like that use of the word “challenges”. It’s like the way that a short-order cook presents challenges to the structural integrity of an egg.
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